I never suspected being in the same hospital for the same surgical procedure with the same doctor a year later, but–here I was.
“Hi Dear, how are you feeling today?” the nurse asked while scanning the computer in front of her.
“Um, I’m feeling fine, thank you.”
Except that wasn’t entirely the truth. The heavyset nurse at my bedside had been massaging the vein in my left arm for several minutes now, poking it every now and again, without success. I tried explaining to her that she might want to try the other arm as the right arm is typically the key to victory. But, she refused. She was in a standoff now. A standoff of pure stubbornness between the reputation of her RN status and the olympic-like evasiveness of my vascular system. And neither of them were giving up easily. She sat rubbing, poking, taking heavy breaths of frustration in between, determined to get the needle in, while my vein hid itself in determined protest.
“And how many weeks are you, Dear?”
“Uh…I’m–I’m just shy of 14 weeks.”
“Ah. I am so sorry for your loss, dear.” She said with an expressionless face as she typed away at the computer, yawning in between taps.
“No, no, it’s okay,” I said. Waving my hand at the air in front of me as if batting at an invisible balloon.
Have you ever noticed how we do that? When we are grief-stricken, in order to spare the other person the discomfort and awkwardness that our grief might bring them we whisk it away–as if it is one of those white, feathery tufts of a dandelion floating in the air.
I spent every day praying for a baby after our first miscarriage in September of 2021. And, that is not an exaggeration. Every. Single. Day. I prayed. And every week I pleaded with God in quiet desperation to give me the gift of motherhood–one last time. And as the months rolled by that prayerful pleading became tearful imploring.
Month after month passed, with negative pregnancy test after negative pregnancy test. It’s hard to explain the rollercoaster of emotions that are felt when trying to conceive. It begins with the joyful anticipation of hope at the start of every month that is met with the disappointing painful reality of an empty womb at the end. Month after month. This went on for a year. And I grew tired, physically and emotionally.
At the age of 42, soon to be 43 I knew my window was closing. If not because of biology then because of rational practicality. Aj and I had agreed, although I agreed reluctantly, that this was our last attempt at expanding our family. We would try until August and then be done trying. The closer we got to August the more panicked I felt and the more devastating each negative pregnancy test became. And the more tired I grew.
Early September I received a positive pregnancy test. I couldn’t believe it. So much so that I took another test just to be sure. It was an absolutely incredible answer to my prayer over the past year, right down to the specific month. I got pregnant in August! I was overwhelmed with gratitude, I was in awe that in his infinite love and mercy God had answered my prayers in the final hour.
Given the miscarriage the last time around, I treaded lightly in my excitement, but nonetheless, I was elated to use a more accurate word choice. Finally, our family would be full and complete. And my momma’s heart was brimming with love and affection for this growing life inside of me. This life that I thought would never happen, even though I prayed so desperately that it would. His goodness felt so–good.
I laid on the examination table with the sonographer scanning my insides, having a deja vu experience. I had been here before and the outcome wasn’t good. I prayed silently as she scanned. Finally, she broke the silence.
“Ah, I have a heartbeat here.”
“Oh good!” I said as my shallow breaths became full now.
“How does it sound? Is everything okay?” I said with nervousness, stretching my head up and around to see the monitor on the wall in front of me, hoping to get a look.
“Ah, it’s …about… 187 beats per minute.” She said with hesitation as she peered into the screen in front of her scanning and taking pictures with the wand that she held firmly inside me.
“That’s a little high, isn’t it?” I said more as a statement to myself than a question to the sonographer.
“Um, that’s a question you’ll have to ask the doctor, she’s more qualified than I am to speak to that.”
Right then I knew something wasn’t right. I had been here before, asking questions and getting non-answers in return.
But she had detected a heartbeat, so that’s a good thing. I told myself in order to keep positive and help pass the time as I sat alone, fully dressed now in the examination room, waiting for the doctor to go over the imaging with me.
The door opened at last.
“Hi, I’m doctor Francois.” She said while extending her hand towards mine to meet it with a customary formality, seeing I was unable to make an appointment with my regular OB, as this was an emergency visit due to bleeding I was experiencing.
“These are always nerve wracking appointments, even for us.” She said while sitting and adjusting herself in the chair in front of mine.
Why was she nervous? I thought silently to myself as I gave a tepid smile to the beautiful ebony face that looked back at me.
Over the next several minutes, strange words and strange terms seemed to strangely float through the air over and around my head. In the middle of this very serious monologue by the doctor I couldn’t help but wonder what it would be like if I could pop all of these strange words– like bubbles produced from a bubble stick on a warm summer’s day that surround you. The novelty of the bubble isn’t so much the bubble itself, instead it’s the thrill you get chasing them down, popping them as you laugh and giggle at the chaos of them all–bursting them one by one. At this moment, I pretended all it would take is one finger and POP–it would all dissipate into the air around me …
“Down syndrome.” …Pop!
“Fluid around the baby’s neck.”… Pop! Pop!
“Trisomy 13.” …Pop! Pop! Pop!
Trisomy 18.” Pop! Pop! Pop! Pop!
“Incompatible with life.”…POP! POP! POP! POP! POP!
Sitting alone in that small exam room, with a stranger and her strange words floating strangely all around me, made my alone-ness feel even more strangely…alone.
And God’s goodness didn’t feel quite so good anymore.
We did our best to hold on to hope for the next few weeks while waiting for the bloodwork to come back and our next imaging appointment with the genetic counselor. Maybe the doctors were wrong, we told each other? We prayed for a miracle. That was all we could do. I hardly got a full night’s sleep those following weeks. I woke at 2 or 3 in the morning with a heart and mind full of fear, unable to go back to sleep. What would our lives look like? What would our baby’s life look like?
I also felt a great amount of guilt. That somehow this was all my fault. I had prayed and pestered God for a year for another baby. If only I had been satisfied with what he had given me.
The waves of anxiety at times were so overwhelming. Every so often they were settled by overwhelming peace, that no matter what, God was in control. We held on to the truth, that God’s way, although not ours, is always best. He had us…He always has. But this was something I told myself more than felt. And, although it is true I just couldn’t stop the tears and worry from splashing over me at times. And it all made me so tired.
On November 14, 2022 we lost our baby boy. The official diagnosis was Trisomy 13. A very rare chromosomal abnormality. Babies born with Trisomy 13 are born with many birth defects. Brain and heart defects, kidney problems, cleft lips and palates. Sometimes extra fingers and toes. They have severe intellectual disabilities and need ongoing medical care. The reality is though, most babies with Trisomy 13 don’t live past their first week of life.
Under normal circumstances I would be 5 months pregnant, right now. With a rapidly growing belly and a heart full of joyful anticipation. Instead, I sit here with an empty womb and a heart full of sadness.
Proverbs 13:12 reads, “Hope deferred makes the heart sick, but a desire fulfilled is a tree of life.” This verse has never felt more real. This death isn’t just the death of this very real baby boy. It is the death of a dream as well. I will never have another child. Our family will never be expanded. And my heart feels sick.
I feel guilty and selfish, even as I write these words. Because I have been blessed with a beautiful darling girl. While so many live a life of bareness, I already have more than so many others. But, the truth is, it doesn’t negate the pain or the reality.
Miscarriage is lonely grief. No one experienced this life, but me. No one talked to this life, but me. No one carried this life, but me. And now, no one really carries the grief…but me.
I often wonder why God bothered to answer my prayer at all, if he was just going to take it away in the end anyway. Truthfully, this isn’t the first time I have asked this question in my life. And I am certain, it won’t be the last time. In the words of Job, “The Lord gave, and the Lord has taken away; blessed be the name of the Lord.”
I have a tattoo on my right arm that reads “I AM” in Greek in the middle–the first name that God ever titled himself with–”I am the I AM.” And on each side of this title I have the words “good” and “loved”. The purpose is to remind me who He is, always, even in the darkest of moments…”Good.” And at the same time to remind me how in those dark moments I am…”Loved” by Him.
And that is what I hang on to in this lonely, exhausting grief. That he is good and I am loved by him.